VIDEO

Why Genetic Testing and Clinical Trials Matter for FTD-GRN: A Personal Story

In this video, Betsy HIn this video, Betsy Hall shares her deeply personal journey with frontotemporal degeneration (FTD) and the GRN genetic mutation. After witnessing the impact of FTD on her mother and grandmother, Betsy made the decision to participate in clinical trials—an experience she describes as both empowering and essential in the fight for a cure. She discusses the importance of genetic testing, how it can provide clarity for families, and why research participation is a vital step toward future treatments. Watch to learn more about her perspective and the hope clinical trials bring to families affected by FTD-GRN.all shares her deeply personal journey with frontotemporal degeneration (FTD) and the GRN genetic mutation.