Progranulin & FTD-Related Videos, Podcasts, Blogs & More

Progranulin & FTD-Related Videos, Podcasts, Blogs & More

Whether you're looking to learn more about Frontotemporal Degeneration (FTD), understand genetic testing, or hear firsthand experiences from families and researchers, our curated resources provide valuable information to guide you on your journey.

BLOG

Your Guide to Considering Presymptomatic Genetic Testing for Frontotemporal Degeneration (FTD)

Learn about genetic testing for presymptomatic Frontotemporal Degeneration (FTD), including risks, benefits, and next steps for families affected by FTD.

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PODCAST

How does genetic testing intersect with grief?

In this special bonus episode of the Remember Me podcast, genetic counselor Erynn Gordon, MS, CGC discusses the emotional journey of genetic testing, particularly in the context of Frontotemporal Degeneration (FTD) and progranulin-related cases.

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VIDEO

Why Genetic Testing and Clinical Trials Matter for FTD-GRN: A Personal Story

In this video, Betsy Hall shares her deeply personal journey with frontotemporal degeneration (FTD) and the GRN genetic mutation.

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