Access selected support organizations and educational materials for individuals and families seeking reliable information and community support. Every resource listed has been curated from reputable and trustworthy organizations, ensuring accuracy and credibility.
Association for Frontotemporal Degeneration (AFTD)
AFTD is the leading organization focused on providing education and support for all people impacted by FTD and driving research to a cure. The AFTD provides information, a helpline, support groups, and many other resources.
FTD Disorders Registry (FTDDR)
The FTD Disorders Registry provides registry participants with updates about FTD, information about ongoing clinical studies, and an opportunity to participate in research via surveys and questionnaires.
National Institute on Aging (NIA)
NIA, an institute of the National Institutes of Health, provides educational resources about FTD to help patients and caregivers better understand the various forms of FTD. This site also lists centers that specialize in FTD for patients looking for healthcare providers with expertise in FTD.
FTD talk
FTD talk, managed by Prof. Jonathan Rohrer’s team at University College London (UCL), provides information and factsheets about FTD.
Remember Me Podcast and Community
Remember Me provides resources, connection and understanding for families, caregivers and people affected by FTD.
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San Francisco, CA 94107
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