We know FTD can be difficult to navigate and we are here to make it a little easier. Below are links to helpful organizations that provide education, support and additional resources. Need more answers? Check out our FAQs below.
Association for Frontotemporal Degeneration (AFTD)
AFTD is the leading organization focused on providing education and support for all people impacted by FTD and driving research to a cure. The AFTD provides information, a helpline, support groups, and many other resources.
FTD Disorders Registry (FTDDR)
The FTD Disorders Registry provides registry participants with updates about FTD, information about ongoing clinical studies, and an opportunity to participate in research via surveys and questionnaires.
National Institute on Aging (NIA)
NIA, an institute of the National Institutes of Health, provides educational resources about FTD to help patients and caregivers better understand the various forms of FTD. This site also lists centers that specialize in FTD for patients looking for healthcare providers with expertise in FTD.
FTD talk
FTD talk, managed by Prof. Jonathan Rohrer’s team at University College London (UCL), provides information and factsheets about FTD.
Remember Me Podcast and Community
Remember Me provides resources, connection and understanding for families, caregivers and people affected by FTD.
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